"There's a myth that anyone who has a liver problem has brought it on themselves" This quote is from a Crohn's disease patient living with a blocked portal vein hoping for a liver transplant (Independent 31st Oct 2010)

Sunday, 17 April 2011

See saw

This is for my Nomad forum friend Ceesaw. Thanks for bringing some much needed clarity to my state of indecision. You can never been down for long with a see-saw or a Ceesaw.


  1. Dear Fiona,
    It seems to me like you are on a merry-go-round ride. Sometimes you're up and others you're down, similar to a seesaw, but at the same time you are also going in circles. I hope the doctors can figure out how to choose a direction to go with your treatment. It would be nice if you could finally make some progress and get off the merry-go-round for a change.
    I love the pictures you have found for your last few posts. Like they always say... a picture is worth a thousand words.
    You are in our thoughts and prayers. xoxox Carla

  2. Luckily most diseases have a standard diagnosis and treatment. Protocols, procedures and guidelines agreed on by the medical profession. You have 'X' - we treat it with 'Y'.

    Some diseases of the immune system don't have a set of boxes to tick with a confirmed diagnosis. They have a scoring system when 10/10 is a 'yes' and anything less is a 'maybe'. Add to that co-infection with another condition and you can throw treatment plans and protocols out the window!

    If the affected body part was, say, an eye or a limb, even as in Steve's case quite a bit of his digestive system, I could potter along without it. Unfortunatly I can't potter along without my liver. So lets hope they make their minds up sooner rather than later.

    Hugs to you both