"There's a myth that anyone who has a liver problem has brought it on themselves" This quote is from a Crohn's disease patient living with a blocked portal vein hoping for a liver transplant (Independent 31st Oct 2010)

Sunday, 3 April 2011

April Fool was on me

Back in November last year I was hunting a hepatologist. Ended up carrying on with Dr S, my GP and the surgical team.

Now that the February liver biopsy report (more on this in another post) has been looked at by the MultiDisciplinaryTeam responsible for my care, the decision has been made to refer me to a hepatologist - AT LAST.

A new clinic has opened at Salford Royal hospital, which is about 20 miles away.

It's led by a hepatologist transferred from the Freeman Hospital in Newcastle, a specialist liver transplant unit.

I'm hopeful he brings with him expert knowledge and it's a joint post with North Manchester hospital where my surgical team and the MDT team are based.

The appointment came as a shock. The MDT met and made this referral on March 9th, but forgot to tell me. Hey ho, why should I presume I matter!

A Salford hospital appointment lady rang out of the blue on Friday 1st April to check I was available on Monday 4th. April Fool of course.

Me: 'appointment, what appointment? You must have the wrong patient'

Her: 'Can I check your date of birth, yes that's correct'

Me: 'appointment, what for?'

Me: Panic - do I have to go to Salford for the second attempt at the endoscopy? Oh no, I don't want to do that.

Me: 'Who made the appointment?'

Her: 'Mr O'Blimey'

The fog starts to clear and I call his secretary, who explains. Phew.

I still don't have the Biopsy report, or the CT report, and would very much like to be up-to-date with myself (!) before I see this new guy. Hence my rush to the GP and the secretaries, yet again, coming up trumps by printing everything off for me, including a copy of the referral letter I never got.

These ladies are due some Easter egg treats.

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