"There's a myth that anyone who has a liver problem has brought it on themselves" This quote is from a Crohn's disease patient living with a blocked portal vein hoping for a liver transplant (Independent 31st Oct 2010)

Tuesday, 30 July 2013


25th May 2010,
T and I played a 9-hole golf course. The post I wrote then became the first post on this blog.

Yesterday, 29th July 2013, along with T, J and J's girlfriend B, I played a 9-hole chip and putt course for the first time since that 2010 round. Its taken 3 years but managed it fine, tired next day but not stiff or sore. Qualifies as a milestone!

At the beginning of July I had my 6-month MRI scan. Not had a printed report yet (will chase that in a few weeks), but have heard that the images have been seen/discussed at the MDT meeting at North Manchester and all is ok.

Had my 3-month clinic appointment with Dr Al at Salford last Tuesday, and all ok there. Steroids are now being weaned off - I should be free of them in another month. I feel well at the moment, more stamina than since before I started on the Azathioprine, so Dr Al reckons it's doing its stuff. There has been a noticeable improvement to my well-being since starting the Aza whereas the Tenofovir, although it suppressed the viral load of the hepatitis B hasn't made me 'feel' any better. I suspect that all the symptoms I've had over the last 3 years have mainly been caused by the autoimmune hepatitis and the medication for that is finally helping.