ONWARDS AND UPWARDS - a diagnosis and treatment of Hepatocellular carcinoma (primary liver cancer) diagnosed August 2010, presumed caused by 30+ years of chronic hepatitis B. And a search for how to be healthy living with cirrhosis presumed caused by Autoimmune hepatitis (diagnosed April 2011)
"There's a myth that anyone who has a liver problem has brought it on themselves"This quote is from a Crohn's disease patient living with a blocked portal vein hoping for a liver transplant (Independent 31st Oct 2010)
Friday, 30 March 2012
A label
I've found the correct 'label' for the variant of Hepatitis B I now finally know I have.
It'sHepatitis B e Antigen–Negative Active Chronic Hepatitis B.
So now ya know! I'll tell my GP next time I see him. Bet he's never heard of it.
Yes it will Carla. I recently looked at some old correspondence from the gastro doctor who my GP first sent me to. He said there was no need to check things like genotype, or viral load, and even told me I had 'cleared' the virus. He got it so, so wrong. Thank goodness for thorough Dr Al. He has me lined up to be checked out every MONTH for the first 6-months of taking this drug. He really is looking out for me. Hope Steve is ok at the moment.
Fiona, I'm glad you have Dr. Al on your team! Steve is hanging in there. He is trying to wrap up his senior project and final classes before graduation. The project he took on has been way more involved than he had anticipated. If it was the only thing on his plate his schedule would be loaded... but that never happens. His recovery from surgery is going well. He just has to survive the next month with school, work, family, church, etc. and things should settle down a bit. I'm doing everything I can to try and lighten his load, but what I can do is limited. The kids are on spring break this week so I'm looking forward to no alarm clocks in the mornings. Have a good week. Carla
Fiona,
ReplyDeleteWill knowing the exact variant help in being able to treat it more effectively?
Carla
Yes it will Carla. I recently looked at some old correspondence from the gastro doctor who my GP first sent me to. He said there was no need to check things like genotype, or viral load, and even told me I had 'cleared' the virus. He got it so, so wrong.
ReplyDeleteThank goodness for thorough Dr Al. He has me lined up to be checked out every MONTH for the first 6-months of taking this drug. He really is looking out for me.
Hope Steve is ok at the moment.
Fiona,
ReplyDeleteI'm glad you have Dr. Al on your team! Steve is hanging in there. He is trying to wrap up his senior project and final classes before graduation. The project he took on has been way more involved than he had anticipated. If it was the only thing on his plate his schedule would be loaded... but that never happens. His recovery from surgery is going well. He just has to survive the next month with school, work, family, church, etc. and things should settle down a bit. I'm doing everything I can to try and lighten his load, but what I can do is limited. The kids are on spring break this week so I'm looking forward to no alarm clocks in the mornings. Have a good week.
Carla