"There's a myth that anyone who has a liver problem has brought it on themselves" This quote is from a Crohn's disease patient living with a blocked portal vein hoping for a liver transplant (Independent 31st Oct 2010)

Monday, 19 September 2011

Two letters

Two letters from the liver clinic arrived in the post:

1) a copy sent to my GP reviewing the July bloods done by the GP and seen by heppy doc in clinic. Heppy doc advises the GP all is well and they wont need to do monthly bloods. Monitoring to be reduced to 3-monthly, done by Salford clinic.

2) a copy of another letter typed up 2 days later - after the September bloods taken at Salford have been reviewed. Three important results are listed: a) my tumour marker; b) my liver inflammation and c) my immune system activity.
c) is stable. a) and b) have gone UP. Between 21st July and 12th September the downward/stable trend has reversed.

Darn it. Now I'll definitely get another set done by the GP in early November, as the liver clinic review in January is too far away for peace of mind.


  1. Good that you've got a GP who will do your bloods for you Fiona - hopefully they'll be okay in November.
    Did you find out how much the tumour marker increased by?

    Stay on top of things hun, might be a 'fluke' result
    Hugs xxxx

  2. Fiona,
    I have come to the conclusion that cancer is the craziest roller coaster ride of anything that is out there. Just when you think you might get some smooth track or maybe be able to get out of the car, it throws some curve, hill, loop or other surprise at you. I'm sorry your moment of peace was so brief. Take care and hang in there.

  3. Hi guys and thanks.
    It's only gone up by .4 Carole, and still well within normal range. This is the paradox of close monitoring - you want it because you think it will reassure you, but then you dont want it because you know immediately something is not as it was!
    I'm due another CT scan in the next few weeks, and am confident that will show 'all clear', as this is such a tiny blip and could be explained away by a small increase in viral activity.
    But we all want things to return to normal and stay normal don't we! Some hope!