"There's a myth that anyone who has a liver problem has brought it on themselves" This quote is from a Crohn's disease patient living with a blocked portal vein hoping for a liver transplant (Independent 31st Oct 2010)

Wednesday, 1 February 2012

January clinic results

Emailed heppy doc's secretary on Monday 30th, to remind her I had been waiting 2 weeks for test results that should have been available within days.
Got an out of office reply which said she would be back 31st Jan.
Got an envelope in the post today (1st Feb) postmarked 8.23am 31st Jan with paper copies of the test results.
Yay! She got into work early then!

Immunoglobulins ok. IgG still a little high but continuing to come down. This is the one that fits with my autoimmune diagnosis.
Anti-nuclear antibody - 1:100 weak positive. This also fits with my autoimmune diagnosis
Smooth muscle antibody - 1:40. 1:20 is normal, but this level of 1:40 is nothing to panic about, just fits with the autoimmune again
Mitrochrondrial antibody - 1:40 (1:160 would be a problem, but 1:40 is ok)
ESR - this was to see if I was having a polymyalgia rheumatica flare. Came back within normal range, so that's good
HBV DNA viral load - detected @ 123 iu/ml. It means I have 123 of the little critters in a particular measure per mil of blood. Treatment wouldn't be indicated until a level of 2,000, so we plod along watching this low detection level at a safe distance.
Full Blood Count all win normal range.
No Liver Function results and no tumour marker AFP. I'm fairly sure heppy doc said he was taking an AFP, but its been steady at 1 for a while now, so not bothered about that. I should get it done again in April.
No letter as yet to my GP about all this, but no doubt that will plop through the letterbox all in good time. If not, back to the email reminders again!
So that's me done and dusted.

3 comments:

  1. Yeah!
    Great way to end the month of January!
    Hope the good news continues though out the rest of the year.
    Happy February:)
    Carla

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  2. Atta girl, Fiona! As Carla already said, that's a great way to start the new year. I left you a hug on my blog. :)

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  3. Hi Fiona,

    hope it's ok I'm leaving a comment on your blog. I'm with PIP Health and we are doing some research into the experiences of people with liver cancer.
    I was wondering if you are interested to be involved in that, please send me an email to kirsten@piphealth.com so I can explain it to you a bit better.

    Take care, keep on getting good news.

    Kind regards,
    Kirsten

    ReplyDelete