"There's a myth that anyone who has a liver problem has brought it on themselves" This quote is from a Crohn's disease patient living with a blocked portal vein hoping for a liver transplant (Independent 31st Oct 2010)

Tuesday, 14 September 2010


Another day of chasing telephone calls.
My GP has the results of my HBV viral blood tests taken by Dr Caravan-a-nan the consultant who will treat the hepatitis. They are gobbledygook to her and she suggests I ring his secretary.
Either Barbara is chained to her desk or she walks round at the end of a long phone cord, as she always reassuringly answers the phone first time. Yes she has the results and she typed them into a letter on Friday. She'll remind Dr Caravan-a-nan to sign it and will post it post haste.
These results will give me an idea as to how active the virus is at the moment and what the anti-viral treatment might be.

Clare, the Macmillan nurse, rings with a series of 3 appointments on pre-op day Tuesday 21st. We'll need to be up and away early to beat the Manchester rush hour and get to a 9.15am CT scan at North Manchester General Hospital.
Then an echocardiogram at 11.15 to check my mitral valve prolapse.
Pre-op at 1pm to make sure I don't have MRSA etc.
And to round it off another chat with Clare to talk through what will happen during the 5 hour op and the 2 days in the High Dependency Unit. T & J need to prepare for tubes and beeping machines if they want to visit.
I ask her for the results of the blood tests done September 9th. My AFP is up again. From 0 to 42 to 152 now. It's the tumour that produces AFP.

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