"There's a myth that anyone who has a liver problem has brought it on themselves" This quote is from a Crohn's disease patient living with a blocked portal vein hoping for a liver transplant (Independent 31st Oct 2010)

Wednesday, 26 September 2012

Still undetectable while on reduced dose

Had my most recent viral load (VL) through the post today. Still showing my 'undies' at  <15 iu/ml, which classifies as negative.  So that's great news, as I've been on a reduced dose of the Tenofovir for 2 months.

Hopefully I can plod along with a 68% kidney eFGR.

I do have a slight problems with what the hepatologist calls lymphadenopathy. I have uncomfortable areas around lymph glands/nodes in the bit of your neck they call 'submandibula';  the 'posterior' - which is from your skull base down behind your ear, (both on the right side) and around the left armpit down my upper arm. Hepatologist assures me the Tenofovir doesnt affect the lymphatic system, so not sure what's causing this. Maybe a good time to get another FBC (full blood count) run to see what my immune system is doing.


  1. Fiona,
    I hope you are able to find some clear, simple, and reassuring answers to what is going on with your lymphs! I would hate not knowing what is going on. I'm so glad the reduced tenofovir is working. Thanks for the update: ) I'm off to visit my sister in Vermont. Hopefully the kids and Steve survive well without me.

  2. Hi Carla. Have a lovely time with your sister. Hope Steve is keeping well.