"There's a myth that anyone who has a liver problem has brought it on themselves" This quote is from a Crohn's disease patient living with a blocked portal vein hoping for a liver transplant (Independent 31st Oct 2010)
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Dear Fiona,
ReplyDeleteIt seems to me like you are on a merry-go-round ride. Sometimes you're up and others you're down, similar to a seesaw, but at the same time you are also going in circles. I hope the doctors can figure out how to choose a direction to go with your treatment. It would be nice if you could finally make some progress and get off the merry-go-round for a change.
I love the pictures you have found for your last few posts. Like they always say... a picture is worth a thousand words.
You are in our thoughts and prayers. xoxox Carla
Luckily most diseases have a standard diagnosis and treatment. Protocols, procedures and guidelines agreed on by the medical profession. You have 'X' - we treat it with 'Y'.
ReplyDeleteSome diseases of the immune system don't have a set of boxes to tick with a confirmed diagnosis. They have a scoring system when 10/10 is a 'yes' and anything less is a 'maybe'. Add to that co-infection with another condition and you can throw treatment plans and protocols out the window!
If the affected body part was, say, an eye or a limb, even as in Steve's case quite a bit of his digestive system, I could potter along without it. Unfortunatly I can't potter along without my liver. So lets hope they make their minds up sooner rather than later.
Hugs to you both