tag:blogger.com,1999:blog-7355171626985343893.post3474062147089794954..comments2022-03-06T08:04:50.385+00:00Comments on Onwards and upwards: CT scanFionahttp://www.blogger.com/profile/04875135033312240905noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-7355171626985343893.post-48375009841051022862011-11-04T16:38:43.414+00:002011-11-04T16:38:43.414+00:00Here is an example of Rosie's writing:
"...Here is an example of Rosie's writing:<br /><br />"If you feel like you’re going to die from cancer, but you’re not scared and you’re just ready and the time you had leading up to it was spent making the most of it and you could see the pros of dying (no washing up etc) and you haven’t got any unfinished business and you’ve made sure that everyone is set ready for their future then I Fionanoreply@blogger.comtag:blogger.com,1999:blog-7355171626985343893.post-48237851379164058702011-11-04T16:32:04.673+00:002011-11-04T16:32:04.673+00:00Josh
Do you know the Macmillan online site? I have...Josh<br />Do you know the Macmillan online site? I have a friend on there, essgirl, who has a different type of liver cancer (FHC or Fibrolamellar Hepatocellular Carcinoma a rare variant of primary liver cancer). I noticed a post of hers about a young girl, Rosie, who wrote a blog about dealing with liver cancer (also FHC) in her teens. When you feel strong enough you might find it worth a peek Fionanoreply@blogger.comtag:blogger.com,1999:blog-7355171626985343893.post-60916260593641645992011-11-04T11:14:06.925+00:002011-11-04T11:14:06.925+00:00Hi Josh
You're allowed to be terrified. Its ...Hi Josh<br /><br />You're allowed to be terrified. Its a scary time for you all.<br />Sometimes I think it's scarier for family members on the outside looking in, as you probably feel quite helpless.<br />Scary too for your brother.<br />I thought that the more procedures I had the less stressed I would get, as they became familiar.<br />But it hasnt worked out as I thought, I find each Fionanoreply@blogger.comtag:blogger.com,1999:blog-7355171626985343893.post-48488575668863505412011-11-01T22:56:18.316+00:002011-11-01T22:56:18.316+00:00Thankyou for your best wishes and they are returne...Thankyou for your best wishes and they are returned from warm hearts.<br /><br />His tumor has spread to the lining of his abdomen, so in order to shrink them he has been put on a chemotherapy regime of doxorubicin and cisplatin combined. He is also taking Nexavar (sorafenib) which our consultant has managed to get hold of despite the costs. (I pay my taxes!) He's due back in hosp on monday joshnoreply@blogger.comtag:blogger.com,1999:blog-7355171626985343893.post-34064715796647459222011-10-27T11:05:33.411+01:002011-10-27T11:05:33.411+01:00Hi Josh and thank you so much for your comment.
...Hi Josh and thank you so much for your comment. <br />I'm sorry to hear about your brother. It must be very difficult for you finding information about similar cases - obviously very rare.<br />I hope the hospital are managing his case well and that he continues to respond to treatment.<br />Are you able to share what that treatment is?<br />Every time I go to Salford Royal for clinic Fionanoreply@blogger.comtag:blogger.com,1999:blog-7355171626985343893.post-41512915270358000832011-10-26T23:30:48.821+01:002011-10-26T23:30:48.821+01:00Hello Fiona good to see you're doing well your...Hello Fiona good to see you're doing well your positivity and attitude is second to none!<br /><br />We're down the road at Manchester Children's Hospital due to my brother having advanced HCC. He's a 15 year old boy with no hep, cirrhosis or any identifiable causes; thus making him 1 in 70 million. Baffling. <br /><br />He is however showing some response to treatment which is josh fnoreply@blogger.comtag:blogger.com,1999:blog-7355171626985343893.post-86261828724221441732011-10-12T16:52:20.414+01:002011-10-12T16:52:20.414+01:00Not sure about the type of person who set up the N...Not sure about the type of person who set up the NHS systems in the UK, but I suspect a different company set up different sysems for the 150+ different hospital trusts we have running our hospitals. And it seems the different systems dont connect in a secure way. <br />Since my last comment I've discovered that the Salford hospital cant email the results to my GP. Why? Because email is Fionanoreply@blogger.comtag:blogger.com,1999:blog-7355171626985343893.post-58629323953930159892011-10-12T02:04:02.523+01:002011-10-12T02:04:02.523+01:00I'm sorry to hear that Fiona. Sounds like the ...I'm sorry to hear that Fiona. Sounds like the system is set up by someone who never had to wait for the results of THEIR tests. I hope you are better at waiting than I am. Blood tests, fibroscan, and U-Sound I can get the same day, but the viral load would have to go to Mumbai and back and during that time it was so hard to concentrate. <br />Having to wait till Jan is outrageous.<br />I emjeehttps://www.blogger.com/profile/16805505442463555789noreply@blogger.comtag:blogger.com,1999:blog-7355171626985343893.post-72822470224984719112011-10-11T17:30:01.472+01:002011-10-11T17:30:01.472+01:00Hi emjee
Nothing notified to me yet.
It's prov...Hi emjee<br />Nothing notified to me yet.<br />It's proving harder to get any results now that the scans and blood tests are being done in a different health authority. When I had them done locally I could pop in to my GP and they would pass the results on to me.<br />Now nothing gets sent to my GP and I'm expected to wait for my next review in clinic which is January 2012 - very Fionanoreply@blogger.comtag:blogger.com,1999:blog-7355171626985343893.post-44887315745487020092011-10-11T12:38:59.069+01:002011-10-11T12:38:59.069+01:00Any word on your scan results yet?Any word on your scan results yet?emjeehttps://www.blogger.com/profile/16805505442463555789noreply@blogger.comtag:blogger.com,1999:blog-7355171626985343893.post-41344277421107190082011-10-10T09:05:55.326+01:002011-10-10T09:05:55.326+01:00Don't worry We just wish that your result will...Don't worry We just wish that your result will be positive.<br /><br /><br /><a href="http://www.sivr.net/Breast-Cancer.html" rel="nofollow">Breast cancer Treatment</a>radiologistusahttps://www.blogger.com/profile/18275855292527518303noreply@blogger.comtag:blogger.com,1999:blog-7355171626985343893.post-23904154773564661562011-10-02T14:20:36.466+01:002011-10-02T14:20:36.466+01:00Hello Medical Shaman. I don't have a tumour a...Hello Medical Shaman. I don't have a tumour at the moment - at least I hope I don't!<br />I try to rest Medical Shaman, but it's also good to get fresh air and exercise every day to stay healthy.Fionanoreply@blogger.comtag:blogger.com,1999:blog-7355171626985343893.post-43336759753449179772011-10-02T00:35:39.242+01:002011-10-02T00:35:39.242+01:00hello fiona. I'm from Indonesia. excuse me, do...hello fiona. I'm from Indonesia. excuse me, do you have liver tumour? i think you have to take restMedical Shamanhttp://mbahdukunbagong.blogspot.com/2011/09/nasopharyngeal-carcinoma.htmlnoreply@blogger.comtag:blogger.com,1999:blog-7355171626985343893.post-59830841741506308002011-09-29T19:37:53.265+01:002011-09-29T19:37:53.265+01:00Thanks Carla. Feel a lot better today. Had a laz...Thanks Carla. Feel a lot better today. Had a lazy afternoon being 'trained' in the latest moving and handling of patients. For work we have to be updated annually to make sure we're doing it right. I got to be the 'patient' while the others lifted and turned me and sat me on a bed, (and a toilet, oh joy!) and practiced getting me up and about as if I was an elderly client.Fionanoreply@blogger.comtag:blogger.com,1999:blog-7355171626985343893.post-2190347856653520122011-09-29T18:04:02.925+01:002011-09-29T18:04:02.925+01:00Fiona,
We've got our fingers and toes crossed ...Fiona,<br />We've got our fingers and toes crossed that all your tests come out with good results for you. Hopefully you can catch some rest over the weekend.<br />CarlaAnonymousnoreply@blogger.com